SRS No Doctor knows what is wrong with me.

Discussion in 'On Topic' started by Cronin, Jan 7, 2007.

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  1. Cronin

    Cronin New Member

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    Most Disturbing current symptoms that I find extremely frustrating:
    These symptoms have interfered with school to the point where I have dropped out for now. They have interfered with work to the point where my Boss is asking me to look into medical leave. And with my social life to the point where I either cannot drive or act "normal" because of not being able to pay attention, speak properly, or just be myself.

    1. Extreme Fatigue
    2. Persistent Dizziness
    3. An ever evident case of being light-headed, unaware, not alert, not able to focus, and constant hazy or "high" feeling.

    I feel as if a bag, or veil, has been placed over my head and I can see the world the way I used to be able to. I cannot perceive the world the way I used to. My senses are "dulled."

    Examples,

    The first moments (usually spanning from 30 - 60 seconds) after an individual awakes from a night's rest include a dizzy, not alert, "clouded" and "slowed down" thinking experience. After that person has completed the process of "waking up" he/she feels normal.

    I feel as if I have been stuck in that "waking up" process for over six months, ever since that day in July.

    Some days I am unable to drive.

    I am never able to function 100% at work or school.

    4. Difficult to organize and verbalize thoughts. Thinking is "clouded."

    5. Persistent Static/Grainy/Snowy Vision

    Latest Symptoms (January)

    1. An almost constant nauseous feeling.
    2. When I look in the mirror my face starts instantly spinning.
    3. Any single object I look at for more than a few seconds at a time begins to spin.
    4. "Trailing lights" and bright objects (images stay around after I divert my eyes)
    5. Unusual thoughts

    Symptoms Appearing in December

    - Difficult to organize thoughts, "clouded"
    - Takes longer to isolate meaning (red light, stop sign)
    - Grainy/Snowy Vision
    - Persistent Dizziness
    - Memory loss and Confusion (Mainly tasks assigned at work or key details in conversations had)
    - Spinning vision
    - Distorted objects (appear to lose/gain mass)

    Story & Initial Symptoms (This list written in September and updated throughout)

    On May 15th I left Houston, Texas and began my long drive to Farmington, NH. Would travel around ME & MA as well.

    Mid July - (feeling completely normal up until this point) I would wake up one morning feeling as if I had received no sleep the night before. (If you pull an all-nighter you feel tired, extremely lightheaded, not very alert, can't concentrate, going through your day in a hazy.. spacey way.)

    Never have I felt the same. I awake every day feeling as if I have not slept at all, however I always (only) feel as if I am only 24 hours behind. Even if I sleep for 12-14 hours, or simply 8 hours - no change in the way I feel.

    I maintain a healthy diet (always have), weigh 150 lbs, etc.

    Mid August - Right before I left for NY I tested positive for E Coli (it was in the drinking water) and got through those rough 2 weeks during my time in NY and (later) NJ.

    Then I (somehow) managed to drive back to TX safely.

    Most recently I have been feeling worse (starting early September)

    My symptoms are as follows, please note that not all of these are felt 24/7 (unless stated) and they all have their varying degrees of magnitude resulting in good & bad days of overall wellness. Furthermore, the symptoms that aren't 24/7 are defined as "on and off for several hours at a time" meaning that these can come in several different combinations resulting in a new feeling of illness every day.

    -extreme fatigue (24/7)
    -not fully awake and aware (24/7)
    -feel awake and asleep at the same time (24/7)
    -feel more incased in my body(24/7)
    -Static/Grainy/Snowy Vision(24/7)
    -headaches (24/7)
    -pressure in head (24/7)
    -lightheaded (24/7)
    -dizzy (24/7)
    -lethargy (24/7)

    -confusion (When falling asleep/waking up or REALLY fatigued that day)
    -takes longer to recall information and verbalize/apply it (When I'm REALLY fatigued that day)
    -cannot keep any sort of sleep schedule (Partly due to work schedule)
    -Burning Eyes (4-5 times a week)
    -earaches (1-2 times a week)
    -difficulty following a train of thought (When falling asleep/waking up or REALLY fatigued that day)
    -chest pain (around 3 times a week)
    -chest pressure (around 3 times a week)
    -poor balance (When I'm REALLY fatigued that day)
    -disoriented (When I'm REALLY fatigued that day)
    -eyes sensitive to sunlight (Started Recently Mid October)
    -ears sensitive to loud sounds (Started Recently Mid October)
    -bright flashing when eyes closed (Started Recently Mid October)



    CLIFFS: I'm losing my mind
     
  2. zonedoubt

    zonedoubt New Member

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  3. 2500

    2500 Guest

    sounds, similar to anxiety. i know when i was suffering i would feel cloudy, light headed, dizzy. never had much of the other symptoms, but, i know a good portion of those are symptoms of others with anxiety. do you find yourself nervous, anxious, ever have a panic attack? do you drink caffeine, alcohol? do any illegal or rx drugs? live a stressful life? relationships not good? recent death of a loved one? job stability? ever get drepressed, minus when thinking about all these symptoms?
     
  4. Darketernal

    Darketernal Watch: Aria The Origination =)

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    Yeah DEFINITLY get your blood tested for lyme disease. Especially because it was during the summer vacation , you might have received a tick bite overnight, and maby had a rash of some sort that was so not mention worthy that you didn't mention it in this thread. While in fact it some some infectious disease of a tick bite that you received.

    Lyme is nutorious because it causes neurotical problems along with physical problems. The symptoms are so widespread that no doctor can easily pin point what you have, which is another typical trait for lyme.

    http://www.labtestsonline.org/understanding/analytes/lyme/test.html

    Also if this happens to be it and if you manage to test positive, well in any case if you find out hopefully you'll put the results in here.
     
  5. childofbean

    childofbean Green Member

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    Try googling derealization and depersonalization

    http://www.panic-anxiety.com/depersonalization_derealization.htm



    A lot of the descriptions you typed sounded VERY familiar to me from when I used to struggle with derealization and depersonalization due to my anxiety.


    This is just a suggestion; the symptoms of lyme disease do sound very much like what you're experiencing.
     
  6. -=Likwid=-

    -=Likwid=-

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    i wouldn't turn to OT for answers, because regardless of how (un?)intelligent some of us may be, we're nowhere near the appropriate ability to diagnose your symptoms based on this thread alone. the doctors you've seen should have referred you to several different specialists if they didn't have any clear ideas.

    the only things I might want to consider would be medication(s), environmental and/or personal changes and/or any incidents that may have any effect (regardless of magnitude) from the last time you were actually healthy. it might take some time and could be hard thinking up the these things, but the more thinking you do about it, the easier it'll be for you and/or the medical professional overseeing your case to sort shit out.

    taking into consideration the effect this is all having on you personally and professionally, i'd dedicate as much time as possible to resolve this ASAP before it gets any worse than it already has.

    good luck.
     
  7. mrchina

    mrchina Guest

    As a cancer patient, I'd suggest you FLY, DRIVE, or TAKE A TRAIN out of the area in which you live and hit up major teaching hospitals in NYC, Chicago, Boston, etc...

    If you can't get help where you are, go somewhere else. Health > Cost.
     
  8. Drifter87

    Drifter87 Yippi-kay-ay, Motherfucker

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    I SECOND the lyme disease. I use to have it and my symptons were very similars to yours in the end.
     
  9. Vom

    Vom OT Supporter

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    I agree. Do what you must.
     
  10. Cronin

    Cronin New Member

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    Thanks, I've actually been in contact with Metallic Blue.

    I've had two sleep studies and nothing was found. I was treated with CPAP for awhile however it had no effect.

    Endocrinologist is interesting though. I have my first appointment with a Neurologist tomorrow.
     
  11. Cronin

    Cronin New Member

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    no

    yes

    no

    smoked pot several times in the past. Nothing since August however.


    no, I can cope with everything pretty well - except for being sick

    not really no.

    no

    j
    yes, except now that i am sick

    no.


    I've always been a pretty happy person, my childhood was shaky.. but who's isn't? :dunno:
     
  12. Cronin

    Cronin New Member

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    I've had a Lyme Titor - it was negative. Then it said that the results might be a false negative if tests are taken 3 months after infection.

    I started feeling sick in July 2006 :ugh:

    I remember having a lump, maybe a swollen gland?, on the back of my neck for about TWO WEEKS (it was huge) and that happened around the same time I began to feel ill.
     
  13. Cronin

    Cronin New Member

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    interesting, thank you :)
     
  14. Cronin

    Cronin New Member

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    I've lived in four states within the past year and a half. I love to travel. I am a happy person. I haven't made any drastic lifestyle changes. It just.. happened.

    I do, however, have a hard time maintaining personal relationships with anyone. Friends, girls, family, people at work, etc. I have a wild, upbeat, crazy personality. Girls like it how I make them laugh and are drawn to me, however then after a month or so they get bored and break off.

    i've never had a girlfriend for more than a month.

    Friends get pissed at me easily, and I get pissed at them easily. Sometimes I go through states of unexplainable states of being worried. But those are rare. 2-3 times a year?

    Other than that I meet new people all the time so I really am always happy an excited.

    Except for being sick :o
     
  15. Cronin

    Cronin New Member

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    I have no money, no savings, I'm 20 years old and spend everything on clothes/dvd's/food/rent/car/phone :wtc:

    NYC is an option though..
     
  16. scholar

    scholar New Member

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    Maybe get tested for Hep A? Glandular fever? Stuff like that.

    And what's your blood pressure like?
     
  17. Darketernal

    Darketernal Watch: Aria The Origination =)

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    Did you tell this to your specialist?

    http://www.medicinenet.com/script/main/forum.asp?articlekey=24979

    I would definitly get a spine shot to see if it might be encefalitis. Get the spinal fluids to be checked for bacteria/virusses and to see if the color isn't contaminated. Ticks don't only bring lyme with them, it could also be another tick induced disease.
     
  18. Cronin

    Cronin New Member

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    No I did not! It's just so hard to remember things sometimes when I go in - which is why I've made a list to try and record what happens to me and generate some sort of timeline.

    I just remembered about the swollen thing now - and the only reason I just remembered is because -=Likwid=- got my memory stirring with all the thinking :o

    Thank you for that information.
     
  19. mrchina

    mrchina Guest

    dude, I had a lump in my neck once... it turned out to be cancer.... they removed almost all the lymph nodes in my neck.
    I'm not kidding. Here's a picture...
    [​IMG]

    Don't discount anything. I'm a 185lb 5'11 male that's was healthy as could be.
     
  20. Cronin

    Cronin New Member

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    Oh shit :noes: :wtc:
     
  21. CharmedOne

    CharmedOne New Member

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    Sorry to hear you've been feeling so crummy! Sounds quite similiar to the symptoms associated with Vertigo. Even dogs can suffer from it!

    When I was nursing, I had one patient who was on my unit for something totally unrelated who was also being investigated for the type of symptoms listed below.



    Signs and Symptoms


    Vertigo, or dizziness, refers to the sensation of spinning (subjective vertigo) or the perception that surrounding objects are moving or spinning (objective vertigo). Some patients describe a feeling of being pulled toward the floor or toward one side of the room. Moving the head, changing position, and turning while lying down often worsen vertigo.

    The sudden onset of vertigo usually indicates a peripheral vestibular disorder (e.g., BPPV, Meniere disease, vestibular neuritis).

    Symptoms of benign paroxysmal positional vertigo (BPPV) usually last a few seconds to a few minutes and are intermittent (i.e., come and go). They also may include lightheadedness, imbalance, and nausea, usually as a result of a change in position (e.g., rolling over in bed, getting out of bed).

    Symptoms of Meniere disease and vestibular neuritis include vertigo, hearing loss, ringing in the ears (tinnitus), and ear pressure that often lasts hours to days.

    Peripheral vestibular disorders also may cause the following symptoms:
    • Blurred vision
    • Fatigue and reduced stamina
    • Headache
    • Heart palpitations (rapid fluttering of the heart)
    • Imbalance
    • Inability to concentrate
    • Increased risk for motion sickness
    • Muscle ache (especially of the neck and back)
    • Nausea and vomiting
    • Reduced cognitive function (i.e., thinking and memory)
    • Sensitivity to bright lights and noise
    • Sweating
    Vertigo caused by a central vestibular disorder usually develops gradually. In addition to vertigo, central vestibular disorders (e.g., stroke, migraine) may cause the following symptoms:
    • Double vision (diplopia)
    • Headache (may be severe)
    • Impaired consciousness
    • Inability to speak due to muscle impairment (dysarthria)
    • Lack of coordination
    • Nausea and vomiting
    • Weakness
    Complications Severe vertigo can be disabling and may result in complications such as irritability, loss of self-esteem, depression, and injuries from falls. Falls are the leading cause of serious injury in people over the age of 65.
     
  22. Peyomp

    Peyomp New Member

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    This is not really the place. All we can do is guess about whether you are experiencing psycho-somatic illness, or if its physical.

    Take your list to a doctor.
     
  23. DSAzeppelin

    DSAzeppelin New Member

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    sounds kind of like what I have:

    Epstein Barr Syndrome aka Chronic Fatigue Syndrome...


    I'm 20 as well...my mom has it too :hs:
     
  24. hyachacha

    hyachacha New Member

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    I agree with childofbean. It sounds like depersonalization/derealization to me. I have it.
     
  25. 7960

    7960 New Member

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    Yep.

    Not sleeping would explain everything listed in post #1.
     
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